Data is transforming our lives. From the funny memes we see on social media to a life-or-death medical diagnosis. Innovation, whether personalised social media feeds or personalised medicine, relies on collecting, using and sharing personal data. The legal, ethical, regulatory, economic and technological context guides decisions on what data to collect, how to use it and whether to share it.
We shouldn’t make those decisions alone. Collaboration helps us to find the best answers to the most difficult data policy questions and to adapt as the context changes. Our Data Policy Network (DPN) brings together professionals across disciplines with a common interest in data policy.
We support the network by:
The One HealthTech community and Privitar are hosting a community hangout to discuss health data sharing and protected characteristics such as age, race, sexual orientation and disability.
Valuing data is difficult, and vitally important. The Value of Data, a recent report by the ODI, Bennett Institute and Nuffield Foundation, makes a significant step forward in the debate.
The Big Data paradigm assumes that more is better: more data, collected from more sources means that we can make better predictions.
Facial recognition has stepped off the sci fi movie screen into our lives. While we welcome the convenience of using it to unlock our phones or breeze through airport security, other uses are more concerning.
Please come along to our next data policy evening on Tuesday the 10th September. The theme for the evening will be ‘Adtech’ and we’re very pleased to be welcoming Dr Michael Veale, one of the attendees of our first ever policy evening, a leading voice in the field, and a key agitator in the unfurling adtech story, providing his reflections on the issue.
In recent years there has been much discussion about the need to improve access to data to boost AI in the UK. New ideas such as data trusts are starting to be explored to achieve this goal, with the ODI recently commissioned to run two data trust pilots.